RT info:eu-repo/semantics/article
T1 Perceived effects of a home-based social care program on palliative care in Spain from the caregivers’ perspective
A1 Marquina Márquez, Alfonso
A1 Rosa Gimeno, Pablo de la
A1 Prieto Lobato, Juan María
A1 Rodríguez Sumaza, María del Carmen
A1 Lucas García, Jezabel Amparo
K1 Producción científica
K1 6310.09 Calidad de Vida
K1 5309.08 Trabajo Social y Servicios Sociales
AB This study explores the perceived effects of a home-based end-of-life social care program in palliative care in Spain, from the perspective of caregivers. A qualitative study using semi-structured interviews with 75 caregivers from the INTecum project. Non-probability purposive sampling was used to recruit the study participants. The analytical process followed a thematic analysis. Caregivers expressed several factors that were influential in reducing stress and anxiety. Knowing that they can count on a case manager in a situation of need was highlighted as very positive. Another important factor that helped to create a positive sense of security was the speed of the project in offering its services. One of the problems that arose was the lack of support in situations where a transition between home and hospital care was required. Aspects such as listening and kindness, and affection, are highlighted in a very positive way. In addition to the final desires, caregivers also recognized that it was important for professionals to take their relative’s wishes into account when making decisions. Incorporating a psychosocial component in palliative care for both patients and family caregivers is recognized and such actions are recommended, as well the strengthening of social and health care coordination.
PB Taylor & Francis
SN 0098-1389
YR 2024
FD 2024
LK https://uvadoc.uva.es/handle/10324/81457
UL https://uvadoc.uva.es/handle/10324/81457
LA spa
NO Social Work in Health Care, 2024, vol. 63, n. 8-10, p. 623-641
DS UVaDOC
RD 07-abr-2026