TY  - JOUR 
AU  - R. Coca, Juan
AU  - Plaza Gómez, Nicolás
AU  - Paramá, Anabel
AU  - Caramés-Vila, Noa
AU  - Fernández-Vilas, Enrique
AU  - Gómez-Redondo, Susana
AU  - Rodríguez Sánchez, Juan Antonio
PY  - 2025
UR  - https://uvadoc.uva.es/handle/10324/84000
AB  - The analysis of scientific policies on rare diseases provides insights into the evolving dynamics in health systems. This study aims to understand the growing importance of societal influence in the development of policy standards, particularly those...
LA  - spa
PB  - Springer nature
KW  - Política social
KW  - Salud pública
KW  - Cambio y desarrollo socio-educativo
KW  - Rare diseases
KW  - Social policy
KW  - Public health
KW  - Institutionalization
KW  - European policies
TI  - Socio-historical understanding of the institutionalization of rare diseases—analysis of Spanish policies in the European context
DO  - 10.1057/s41599-025-05597-y
ER  -